I hate putting flare photos up on here, for fear it may discourage those in the early stages of TSW.
"What? She's still flaring at 18 months?"
Well, no. 18 months in a weeks time actually. I may be fine when I finally hit the 18 month mark. Who knows?
Yes. I have to be honest. I did think that I would be finished with all this by now. To be still flaring at nearly 18 months is a huge kick, both physically and mentally. Healing suddenly seems a long way away again. I get scared that I am still going to be posting photos like this many years down the line.
Anyway. here is the grim reality of a flare at (almost) 18 months.
My arm was previously white. Now it is all red and blotchy again. it is incredibly itchy and I rake it with my fingernails at night.
My belly is SO ITCHY!!!! I just want to rake it with a garden rake. The whole of the front of my body is like this.
My eye looks like I have been attacked. The eyelid is all flaky and the area between the lid and brow is oozy.
My forehead has lots of bloody gouges where I have scraped it with my nails. Luckily, I have a fringe and I flip it down to cover the mess.
Sorry if anyone was eating their dinner whilst reading this. I should have put a warning up first.
Anyway. Perspective time. Yes, I am flaring, but it is not as bad as previous flares. My face is still looking OK, which is good, as I can cover most of the other bad areas up.
I know that this flare will pass, so I am not overly worried. it hasn't stopped me in my tracks like previous flares and I have been able to go out this morning volunteering at the local school and none of the kids said anything. I got up in front of 100 people last night at my place of worship to give a talk and I didn't think about my skin at all.
TSW is losing its grip on me, but it is having a final fling at my expense!
I know I have come too far to go back to steroids now, so it is just a case of plodding on and hoping that I heal eventually.
9 comments:
Such a positive positive attitude Louise, an inspiration!
I look forward to your posts and know they will keep me focused when I start my TSW!
Keep healing
Siegfried x
Hi Louise
posted a comment to this blog posting earlier this afternoon, but for some reason it came up against another posting (so is now positioned out of context). Anyway, i bet this flare is short lived. Its onwards and upwards for you from now on.
By the way, perhaps the stress of standing up and speaking to your church didn't help? I know you said you were ok about it, but i look awful the day after every time I do a lecture and i've done the same classes for almost 15 years! Im sure public speaking is more stressful than you think.
elaine
x
Hugs xxx
Thanks guys for your support.
Luckily I'm a tough old boot and I'm so used to flares, they don't bother me too much anymore.
The hardest thing is just wondering how long it is going to take to heal. It seems to be taking forever. X
You are so positive, and it is really uplifting! I am just starting y 14th month and doing horribly. Like you, I know I am in for the long haul but supposed I'd be better than this by now. Oh well. I agree - there is no turning back and we have to keep plugging along! xo
Hi Louise,
I just read your post. I admire your positive attitude! It is inspiring indeed. I know how distressing it would be to have a flare back at this stage, but I must say your skin look definitely better compared to your last flare pics. I'm praying for your recovery.
Tommy x
Hi Louise
Perhaps you need to break up your winter months with somewhere sunny or take up running so that you can expose your skin to some daylight.
Since getting back to marathon running my skin now has patches of eczema rather than a continuous entity of rash.
Take care and hugs from a fellow eczema sufferer.
Thank you for posting.
My skin is now out of the flare. Hopefully, if I have time, I will post some photos tomorrow, which will be my 18 month benchmark.
Hi Louise
HP here. Congrats on 18 months! I'm in NJ visiting my mom and we are reading your blog together. I just made 12 months this month, it was exciting. Your skin looks great in your photos and makes me super positive, as the skin in my body is still worse then yours but I don't feel too far behind.
Just curious, what kind of talk did you give at your hall?
HP
www.eczemancipated.com
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