I feel quite frustrated today. Not with my skin, which, as you can see from the photos is looking great, but from the attitude that many dermatologists seem to display about this condition.
It seems that dermatologists are indoctrinated with the idea that steroids are a cure-all, a magical panacea for inflamed skin disorders. Apply a little steroid and all your problems will go away....
Because doctors are highly educated people, many lack the humility to acknowledge the possibility that they could be wrong. When faced with the idea that steroid creams could be addictive, many just bury their heads in the sand and refuse to look at the facts. I have hears of cases where people have taken copies of Dr Rapaports papers in to their doctor, only to have the doctor ignore the papers, or throw them across the room, dismissing them as quackery before they have even read them.
Interestingly, even the good doctor himself, Dr Rapaport had problems convincing his fellow dermatologists about steroid cream addiction. Since he wrote his paper, he has only managed to convince 10 doctors in the last 10 years. Dr Fukaya also had the same problem. He was ridiculed by fellow dermatologists, so much so that for a time he discontinued his work treating steroid addicted patients.
A member of the itsan forum recently wrote to his dermatologist, explaining the science behind TSA and explaining that he felt that the creams were the cause, rather than the cure of his skin problem. She replied by saying that the reason his skin was flaring was because he needed the creams and his eczema was getting out of control without them. He replied by explaining that if this were simply a flare of eczema, his skin would be getting worse, but as things stood, his skin was actually improving since he ceased steroids. How could the dermatologist explain that? I would love her to take a look at my improvement photos on this blog and come up with some kind of explanation.
The truth is that the "red people" as Dr Rapaport calls us, are like salmon (red salmon!), swimming against the tide. Just remember, in the past, most people thought the earth was flat. Just because "most people" believe something to be the case does not make it so. I believe that the truth about the long term effects of steroid creams will come out eventually and derms will be forced to rethink their approach. Unfortunately, I think that time is a long way in the future and sadly, many kids and adults will have to suffer needlessly first.
3 comments:
I totally agree with you. I was using topical steroid Elocon (mometason furoate) for 13 years, every day..I quit using it at February 13th, this year (I'm 37 now), and now I have steroid induced acne rosacea..These 6 months were very hard for me. I changed my life style completely- I'm on vegan diet, no coffee, sugar or alcohol at all..I'm using Elidel cream 1% (pimecrolimus) and topical antibiotic sometimes, when I have breakout (papules and pustules). My skin usually looks good for a week, and then breakout comes for about a week too..and that's the "magic circle" I live in..
I'm drinking some medicinal-plants tea now, and I have done some detox-programme too, such as liver cleansing, anti parasite programme, hydrocolone therapy etc.
At this moment I'm very scared..I would like to now is it possible for body, for skin, to recover after using topical steroids for such a long time? :(((
I'm lonely in this healing journey, because my doctor just prescribed me another medicine (even worse: Accutane?!)..and I don't want to destroy my immune system again...
Sorry about my English, I'm from Serbia..
Wish you all the best in your healing..
Bojana
Hello,
Yes, this proces can be daunting, but you will see results.
I have a link to a Serbian blog on the right hand side of my page. The lady who writes the blog is called Spela and she has been off the creams for a long time now.
Please consider checking out itsan.org. There is a forum on there where you can connect with other people going through this.
Thank you so much!
I'll check Spela's blog and that forum too..
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