Thank you so much all my blog readers for pushing the pageviews past the 100,000 mark.
If the blog has helped even a tiny fraction of its readers, I am very happy.
I have been blogging for just over a year, so these kinds of numbers are mind boggling!
Here's to the next milestone...One MILLION pageviews!!!!!
9 comments:
I read your blog everyday! And i would want you to know that your courage really amazes me and makes me move forward. Wishing you a speedy recovery.
Hi Faru!
Thank you for your kind words. I am glad the blog has helped you.
What country are you from?
I am from India Louise. And been reading your blog since a few months. And each day i pray u heal soon.
Thank you Faru.
I am feeling better today so hopefully this flare is ending soon.
It is wonderful to connect with people around the world. You could also try joining the Itsan.org forum, where many of us chat about steroid withdrawals.
Lots of love x
Sure will do :)
Louise,
I read your blog now few times. I check it from time to time hoping that you got better which will prove there is some hope for me too:) I went through the same as you last year but I wasn't brave enough and I gave it up after just 2 months. I became unable to care for myself and my skin got to the stage when I no longer was able to put anything on it. No moisturisers, nothng. I was put on oral sterods for 4 months which was a horrible horrible experience that didn't really help my skin anyway. I would still flare up badly no matter what the dose was. When I finished that I tried Protopic which wasn't much helpful either. I was desperate and searching for any solution on internet. I found out about UV therapy for psoriasis by chance and asked my doctor to sign me up for it. It helped! It's the only thing that helped. I still am covered in eczema basically everywhere and it's awfully dry and pnk but it doesn't get wet as it used to. Maybe you could give it a go as well.
Other things use is Diprobase (the ointment) and Ibuprofen to control the inflamation on worst days. It also helped to avoid tomatoes, stawberies and nuts as they are high in histamines (look up low histamine diet). I try to avoid chocolate and caffeine as it definitely makes the flare up worst.
When my skin got better I started using coconut oil for showering which is very soothing.
Hope some of this helps. I still don't have an ultimate idea how to fight this horrible ilness off but I think I'm on a good way.
I admire what you do and hope it will work out!
Best of luck,
H.
Hi Louise,
My girlfriend and I have recently found your blog and it has been very helpful and reassuring for us to read your story. After ceasing to use steroids two weeks ago, she has been suffering from symptoms that seem to suggest the presence of red skin syndrome.
Needless to say, the process has been very unpleasant for her and I was wondering if you know of any doctors in the UK that either sympathise, or are at least willing to discuss topical steroid addiction. Having done a fair amount of our research, we would like to talk to someone with professional knowledge of the condition. I would be very grateful for any leads you could put us onto.
Best of luck with your own journey,
ant
Hi Hanna,
I agree that UV light is good for this condition. my skin almost cleanerd completely in the summer and only flared again when the weather turned bad. Hope you get relief soon. x
Hi Ant,
The doctors issue is a tough one. Personally, I did this whole withdrawal without telling my doctor, but there are others that will be unable to avoid it, especially if the skin gets infected.
Itsan are currently seeking to compile a list of sympathetic doctors. It is only in the beginning stages, but someday we will have a comprehensive list of supportive doctors. Dr Rapapot in the US is an expert, but obviously he lives a long way away. He is holding an international teleconference today (13th Jan). The details are on Itsan.org.
Where about in the UK are you? I can ask some of our other UK members if they know of any supportive doctors where you live. We all had a meet up in London, which was great.
Post a Comment