Check out this latest story in the Daily Mail where a brave young lady going through TSW shares her experiences and also mentions ITSAN!
Thanks for raising awareness.
Tuesday, 24 March 2015
Monday, 9 March 2015
Rock Bottom
Saturday was gorgeous and the sun was out all day. I had a great day outside and it really helped my skin.
Sunday, however, was another matter and it rained all day. My skin went downhill very quickly (like the weather) and was just as wet. The whole of the right side of my face was wet to the touch.
I knew a flare was brewing and I was right. I had a restless night, presumably because of wonky cortisol levels, and terrible weeping skin behind my ears and on my face. It felt like I had acid instead of blood, as it burned a path through my blood vessels. My skin dried to a fine, powdery crust this morning.
So I woke up and look freaky and what is worse, I have to see the asthma nurse today for my yearly check-up and I've a feeling she's not going to be happy when she sees my wrecked-up skin. It's hard trying to explain the virtues of the TSW process when you look this bad over three years in.
Moral of the tale: Don't get dependent on the steroid creams to begin with, because getting off them is a LONG process. If you need regular steroids to make your skin look "normal", then chances are you are already hooked and you have my condolences, the recovery process is hell.
Sunday, however, was another matter and it rained all day. My skin went downhill very quickly (like the weather) and was just as wet. The whole of the right side of my face was wet to the touch.
I knew a flare was brewing and I was right. I had a restless night, presumably because of wonky cortisol levels, and terrible weeping skin behind my ears and on my face. It felt like I had acid instead of blood, as it burned a path through my blood vessels. My skin dried to a fine, powdery crust this morning.
So I woke up and look freaky and what is worse, I have to see the asthma nurse today for my yearly check-up and I've a feeling she's not going to be happy when she sees my wrecked-up skin. It's hard trying to explain the virtues of the TSW process when you look this bad over three years in.
Moral of the tale: Don't get dependent on the steroid creams to begin with, because getting off them is a LONG process. If you need regular steroids to make your skin look "normal", then chances are you are already hooked and you have my condolences, the recovery process is hell.
Thursday, 5 March 2015
Skin Update at 39 Months (photo)
The sun is finally shining here in the UK!!!!
I'm expecting my skin to make big improvements over the coming weeks.
I try and get out in the sun whenever I see it shining on the garden. It's a bit chilly out there, but it is worth trying to tough it out for 15 minutes of precious UV.
I've been on the vitamin D for several weeks now. It hasn't made a massive difference in my skin, but it does seem to help me sleep, so I'm wondering whether it may be beneficial for TSWers with insomnia. Honestly, I sleep like a log and feel really refreshed in the mornings since I started the vitamin D.
Anyway, here is a quick webcam photo:
I'm expecting my skin to make big improvements over the coming weeks.
I try and get out in the sun whenever I see it shining on the garden. It's a bit chilly out there, but it is worth trying to tough it out for 15 minutes of precious UV.
I've been on the vitamin D for several weeks now. It hasn't made a massive difference in my skin, but it does seem to help me sleep, so I'm wondering whether it may be beneficial for TSWers with insomnia. Honestly, I sleep like a log and feel really refreshed in the mornings since I started the vitamin D.
Anyway, here is a quick webcam photo:
Still a bit blotchy, but hoping to improve soon!
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