This blog follows my journey as I quit topical steroids for my eczema. I will chart my observations during the weeks that follow.
The blog is not intended to give medical advice. If you are concerned about a medical condition you should consult a doctor for advice.
Thursday 31 October 2013
Hit With the Ugly Stick...AGAIN!!!!
Here is a photo of me today. Flaring again. Yuk Yuk.
8 comments:
Anonymous
said...
wow louise! i can't believe you are flaring again :( hang in there. thinking of you xx
seems like october has been a bad month for you . i have also been flaring prety bad but with me , its on my hands , neck and face . my hands have suffered the worst this time .with my face i have had more swelling than actual dryness . glands are up and the itch is intense again . it seems to have spread further down and is on my upper chest and under arms . i was talking to someone who is a bit of an expert on seasonal dissorders such as the different types of pollen at different times of the year . he was saying that a lot of people can suffer badly with alergys in octber due to the end of the weed pollen season . mybe this has something to do with your latest flare .i know that more than likely it will be just TSW flare but when we do flare ,our skin does become more sensitive to the elements . maybe anyway . just thought id mention it . keep going louise . im sure that you are nearly there . xx
Yes, I do think it is a seasonal thing as I noticed my asthma gets a lot worse this time of year. Hopefully it may improve as the months pass.
Lisa, I have tried moisturising, but it makes it ooze more, so I am trying to leave it to flake off. I woke up this morning and couldn't move my mouth cos the skin was so tight, so just put a smear of Vaseline around the mouth area for comfort.
Hi Louise! thanks for letting me know! i have the same exact problem right now and its ongoing for about 2 weeks. the skin is so hard to shed like this.. mine seems so stuck and im oozing on my forehead without moisturiser too. just a little. mmmm.... saddddd. thanks for letting me know :)
I hope the latest flare up has subsided, it's a bit miserable at this time of year. I am 22 months in, so just one month behind you and have had a miserable 20th, 21st and 22nd month. I notice my daughter who has eczema, which has been completely under control (probiotics, Dead Sea salt baths and blackcurrant oil) since the beginning of the year has suddenly got a patch of eczema again - grrr. It seems the autumn months are a struggle for the body to cope with :-( the same thing happened to me last year but by mid-nov it was so much better.
Just wanted to say thank you for sharing your experiences - it has been an invaluable support . I remember looking up your post on goopy eyes on numerous ocasions when I was having trouble with my eyes.
Can I ask, now that you are coming to the end (touch wood) of TSW, are you finding that emotionally it's harder to deal with? I find that I am almost desperate to feel normal again and to get on with my life whereas previously I was patiently resigned.
It's weird what you said about your daughter. Mine is exactly the same. Her eczema cleared up in the summer, but she now has a small patch on her neck. I know it will clear by itself so I'm not too worried.
The late flares are always a kick in the teeth. This summer I really thought I was healed and finished with TSW and then this comes along and throws me completely. It's always an emotional rollercoaster, but especially near the end, because you finally feel you are getting somewhere and then it is taken away from you so cruelly.
As I write this (5th November) my skin seems to be no longer flaring, although it is very dry and peely. I have to keep resisting the urge to peel off the layers before the skin underneath is ready!
Hang in there. Hopefully this will be our last winter of discontent!
8 comments:
wow louise! i can't believe you are flaring again :( hang in there. thinking of you xx
Thanks Leslie. It's an October thing. It happened last year too.
I keep hoping this is the final blowout before healing.
Hope you are ok too and coping. TSW is a nightmare on so many levels.
Much love,
Lou x
My skin look exactlu like urs. All the rough dead dry skin.
How do u deal with it louise?
hi louise
seems like october has been a bad month for you . i have also been flaring prety bad but with me , its on my hands , neck and face . my hands have suffered the worst this time .with my face i have had more swelling than actual dryness . glands are up and the itch is intense again . it seems to have spread further down and is on my upper chest and under arms . i was talking to someone who is a bit of an expert on seasonal dissorders such as the different types of pollen at different times of the year . he was saying that a lot of people can suffer badly with alergys in octber due to the end of the weed pollen season . mybe this has something to do with your latest flare .i know that more than likely it will be just TSW flare but when we do flare ,our skin does become more sensitive to the elements . maybe anyway . just thought id mention it . keep going louise . im sure that you are nearly there . xx
Hi john and Lisa,
Yes, I do think it is a seasonal thing as I noticed my asthma gets a lot worse this time of year. Hopefully it may improve as the months pass.
Lisa, I have tried moisturising, but it makes it ooze more, so I am trying to leave it to flake off. I woke up this morning and couldn't move my mouth cos the skin was so tight, so just put a smear of Vaseline around the mouth area for comfort.
Hi Louise!
thanks for letting me know!
i have the same exact problem right now and its ongoing for about 2 weeks.
the skin is so hard to shed like this.. mine seems so stuck and im oozing on my forehead without moisturiser too. just a little. mmmm.... saddddd.
thanks for letting me know :)
Hi Louise
I hope the latest flare up has subsided, it's a bit miserable at this time of year. I am 22 months in, so just one month behind you and have had a miserable 20th, 21st and 22nd month. I notice my daughter who has eczema, which has been completely under control (probiotics, Dead Sea salt baths and blackcurrant oil) since the beginning of the year has suddenly got a patch of eczema again - grrr. It seems the autumn months are a struggle for the body to cope with :-( the same thing happened to me last year but by mid-nov it was so much better.
Just wanted to say thank you for sharing your experiences - it has been an invaluable support . I remember looking up your post on goopy eyes on numerous ocasions when I was having trouble with my eyes.
Can I ask, now that you are coming to the end (touch wood) of TSW, are you finding that emotionally it's harder to deal with? I find that I am almost desperate to feel normal again and to get on with my life whereas previously I was patiently resigned.
Hi Niels!
It's weird what you said about your daughter. Mine is exactly the same. Her eczema cleared up in the summer, but she now has a small patch on her neck. I know it will clear by itself so I'm not too worried.
The late flares are always a kick in the teeth. This summer I really thought I was healed and finished with TSW and then this comes along and throws me completely. It's always an emotional rollercoaster, but especially near the end, because you finally feel you are getting somewhere and then it is taken away from you so cruelly.
As I write this (5th November) my skin seems to be no longer flaring, although it is very dry and peely. I have to keep resisting the urge to peel off the layers before the skin underneath is ready!
Hang in there. Hopefully this will be our last winter of discontent!
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