Suffice to say that, earlier this week I started flaring really badly. I don't know why.
To say that it is a shock after so many months of good skin is an understatement.
I have reverted from having a normal life to being a sofa-bound shut-in. I was supposed to take my son to a basketball match today, but dad has to take him instead. I'm really upset because I was looking forward to it for a long time.
Sleep is awful. Night time is a hot, sticky mess and I often wake up with a wet face and hair matted behind my ears.
On the plus side, the flare is confined to may face and neck. the rest of me is OK.
I know the flare will pass, so I just have to ride it out. I didn't really want to post this, but I'd rather be honest than sugar-coat the pill.
You have to wonder at 38 months, just how long this process is going to take. Sure, I know I will heal again in summer, but will I ever get through a whole winter without a setback like this?
Love and sympathy to all those out there suffering.
15 comments:
I'm so sorry!!!!!!!!!! Louise, I think I have some idea as to the shock. When i flare badly now I can go from normal skin... then it reverts as badly as it did in my atrocious months of no sleep and burning, hot skin. I really hate the hot skin!!! its summer here so its even worse!
I think its because the body sort of "knows" how to flare because its done it before... like knowing how to ride a bike, its ability to flare is drilled into the system.
You said this winter wasn't as severe as last few times... so even though the flare is a pain in the bum in theory it should get less and less severe with each winter.
Now you know the true meaning of the Game of thrones quote 'WINTER IS COMING" xD
Thanks Wynter. So true!
On a plus side, this is my first flare in 4 months and is only located on my face and neck, not full body as previously.
Since posting, the flare has calmed a little. I got a good sleep and wasn't oozy in the night. Skin still very dry and tight though and it's hard to turn my neck. Upper chest is the worst today and the skin is very thin and papery.
Remember those "butterfly prints" you do with creased paper as a kid? Well my chest is a bit like that...
Oh Louise I'm so sorry to see you flare after all these months. Hopefully this will be a quick blip and you'll be well on your way again. The weather can't be helping us either can it? Damn wind!xx
Hi jenny, hope you are doing ok and the EH is at bay.
TSW is anything but linear, right?
Bring on summer.
Blimey Louise, so sorry to hear of this you poor love.
Have a Duvet Week; stick Frozen on again and have a singalong with a nice hot chocolate or something.
Hugs xxx
Done, done and done.
Although we did break our daily frozen ritual at the weekend and watched Enchanted and Beauty and the Beast instead.
Back to Frozen tonight. I have tickets to the theatre singalong in March, and ice show in April, so lots of reasons to get better...
Let's go bring back summer!
So sorry Louise, I am hating the damages this drug can cause more by the minute! I just had a 5 day upper leg flare that is calming now thankfully, and think maybe it will take some of us 5+ years to get through this all the way? Thanks for being honest, we are just the innocent pathfinders in this crazy TSW jungle! xxx
Hi Joey,
Yes. I will always be 100% honest and trustworthy about my TSW journey.
We are the pioneers and trailblazers of TSW and we have to tell it like it is for the future generations
No stock photos or fake healing pictures on this blog!
Sorry to hear about your flare joey, hope you are feeling better soon x
Sorry to hear this Louise, I hope this flare is short lived! X
Well, I posted that picture a few days ago and I'm pleased to say I'm a lot better again now, so I think it was a "flash flare" I'm actually going outside today. Yay!
Hope you are OK too skin friend. X
Geez Louise, Sorry about the rotten flare but have just gotten to the end of the comments to see that you have been steadily improving, which is such great news. Am hoping that the rest of winter brings you happier skin. Here I am dreading the summer heat as it drives my skin nuts. We've had a recent cool change which is a relief but hotter temps back again next week. I wish summer did my skin some good like it does for you and others. xx
Yes, it's weird isn't it, how some of us suffer more in summer, whereas others can't stand winter! TSW really is strange.
Since I posted, the flare has died down, although I've been left with a few battle scars in the form of big scratches on the side of my face, which have scabbed up, so although it feels a lot better, it looks like I've been attacked by a werewolf!
I managed to get out in the sun yesterday, so hope that the UV will help me.
Hope you are doing OK too. X
Oh Louise I'm so sorry to hear you are flaring! You have been an inspiration to me throughout this whole process. Sending lots of healing to you <3
Thanks Sarah,
I'm doing ok today. My skin is a lot better and I even managed to go to a party at the weekend!
Will post some photos when I have time. X
Hi Louise,
I'm really sorry to see your flares. It's crazy how our skin acts up all of sudden, even when you came this far into the TSW. I'I hope that this one is short-lived and you'll feel better soon.
Tommy x
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