Friday 26 October 2012

Day 352 Eczema Charities and Steroid Manufacturers

I haven't slept properly for three nights. I can't sleep on the oozy side of my face, so have to sleep on the other side, which causes my ear to leak fluid.

I am using fucidin (antibiotic cream) on my face, but it seems to be having very little effect. The skin is covered in a fine yellow crust. If I try to remove the crust, more stuff oozes out, so I am going to have to leave it alone.

I am finding it hard to understand what is going on here. Any previous flares have been over in a week. This one keeps running. My face feels like it is on fire and is very itchy. I can't sleep. I can't socialise. I can't function.

I wish I could just relax, but the kids are off school, asking for something every five minutes. Maybe when they are back at school next week, I can relax and concentrate on getting well.

I want to know when this will end. Even if I knew it was going to be a year from now, I would be happy because I would know there was something to work towards. I wonder if my steroid inhaler is prolonging this for me, but I can't go without it.

Another thing that I found interesting this week is this report:

It is no secret that eczema charities get funding from the topical steroid companies, but this report goes further, because it states:


"Upsher-Smith Laboratories, Inc. is proud to support the National Eczema Association (NEA) during Eczema Awareness Month in October to help generate greater awareness about eczema, its treatments, and resources available to help those who suffer from the disease. Since topical corticosteroids are one of the most useful medications for treating eczema(1), Upsher-Smith is taking action to help patients by offering the Trianex(®) 0.05% (Triamcinolone Acetonide Ointment) Instant Savings Card*- offering as little as a $5 co-pay per prescription for three prescriptions of Trianex(®) – making it less expensive than some generic triamcinolones. Additionally, Upsher-Smith is expanding the Trianex(®) sample program where physicians can request free samples and have them sent to their offices"
 

2 comments:

Anonymous said...

I also suffer from eczema and am intimately familiar with all the issues that accompany it. From your description of the ooze as well as the pictures, it sounds like you have an infection - which makes it even harder on the skin. Have you tried doing bleach baths? When my skin gets to the swollen, heated, red-oozing stage, I take a soak in a diluted bleach bath for 10-15 minutes and it usually improves after 2-3 days... just something to try. I feel your pain and thank you for your blog... it makes us feel less alone in this fight against facial eczema.

Louise said...

Hi eczf,
Thanks for leaving a comment. I will be sure to chek out your blog.

I have read a lot bout leach baths nd have heard they are very good fo eczema. Thanks or the suggestion.

Interestingly, i dont believe the skin is infected. I have been using fuciin as a precaution though. Ooze like this is very common in tsw and the ooze is serum leaking between the gaps in blood vessels. It is naturally a yellow colour. None of the other signs of infection are present, but i am keeping a very close eye on it in case it becomes infected.

Thanks for your kind words. Xx